Tag Archives: viral

Joshua’s Story

joshuaMy son, Joshua, a sophomore at Hampshire College in Amherst, Massachusetts died from the complications of Reye’s Syndrome in 1994… he was 19 years old.  At the time his illness began, he was a healthy six-foot college sophomore, happy with his life and the college of his dreams.  He was growing into a wonderful young man and excelled in his course studies at the college he loved.

He called me one snowy day to say he was not feeling well. He asked me what he should do. I advised him to go to Student Health and call me right after his appointment. The doctor said he had the flu. Based on the symptoms he described, I told him he should come home and we would see our family doctor. It seemed to me he had Mono. He came home and saw our family doctor who confirmed that he did indeed have Mono.

The treatment was simple…get plenty of rest and drink lots of liquids. The problem was that as the days progressed, he continued to get sicker. We went back to see the doctor every day for several days. Then he was admitted to the hospital, discharged and admitted again. Still he was no better.

He was admitted once again and this time he was critical. Our doctor either thought there was nothing to worry about or he didn’t know what he was dealing with. Josh had test after test and still there were no answers.

Finally, Joshua was transferred to another hospital… the last time Joshua spoke was in the ambulance. When we arrived at the hospital we were met by a team of doctors and while taking him to intensive care they requested a signed consent form for a liver transplant. Every possible test was done, and finally the diagnosis of Reye’s Syndrome was made.

Doctors put Joshua into a drug induced coma, and on life support. He continued to get worse and on March 4th, he suffered brain death. On March 5th we disconnected life support and he stopped breathing immediately. His death occurred 2 weeks after he was diagnosed with the flu and one week after being admitted to the medical center.

Joshua’s Mom states;

“I strongly believe education is the best prevention. I know I was aware of not giving aspirin to children with viral infection, but I didn’t consider the over the counter medications we all take may contain aspirin.

“Since Joshua’s death, the hospital has instituted a protocol for Reye’s Syndrome because they did not know what they were dealing with in Joshua’s illness.

“There were a combination of issues that played a role in Joshua’s death from Reye’s Syndrome. Our trusted doctor did not take Joshua’s illness seriously, and the other doctors who treated Joshua ran tests but didn’t know what they were dealing with.  When Joshua was admitted to the hospital for the last time our physician went to a medical convention out of state. He called me when he returned to ask about my son. It was too late, Joshua had died.

“It is my strongest belief that parents, doctors and hospitals need to be educated about Reye’s Syndrome. I am finally able to write about this 13 years after his death and would like to offer my assistance in helping to accomplish this important goal.”

Let Joshua’s Story be a learning experience, one that keeps our young people alive and safe from the threat of Reye’s Syndrome. So tell them Why…. tell them about Aspirin and about the products that contain aspirin (salicylates). Teach them to read the labels.

Tell them about Reye’s…. they can pass the word to their friends who offer them an aspirin, alka-seltzer, or pamprin, pepto-bismol or muscle creams that contain salicylates.

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It’s Flu Season: Do you know what meds to avoid?

Flu Season is here again.  Remember to check the ingredients on the prescription, over the counter, and topical products and medications you consider buying to make sure they don’t contain salicylates.

Our handy wallet size ingredient cards can assist you with this, and are available by contacting the NRSF office by email or by phone.  (A small donation for the wallet cards would help us print more as we need them, and cover postage, but it is not mandatory.)

The NRSF does not condone Chicken Pox Parties.  Parents need to be aware that chicken pox is a virus, and in exposing their child to a virus, they also run the risk of Reye’s Syndrome, stroke, and a host of other potential viral complications.  Read more about this issue at www.ReyesSyndrome.Org/chickenpox.html

Reye’s Syndrome is often misdiagnosed as Encephalopathy, which it is a form of, along with drug overdose in Teens and Young Adults, and as SIDs in infants.

This time of year, when Influenza, (Flu) can run unchecked through our communities and schools, we need to do all we can to stave off  viral infection.  If your child is sick, keep him or her home and encourage other parents of sick children to do the same.

Teach children to wash their hands and to sing the Happy Birthday song as they do so.  Three times through, and those little hands can be mostly germ free!  The NRSF, using the CDC’s Kidtastics Flu video has created a video for kids about keeping safe during flu season at Angela and the KidTastics  (Video)

Save a Life this Flu Season; ask your neighborhood School, Day Care, Sunday School, Head Start Program, or Physician’s Office if they know they can download a valuable package of  Reye’s Syndrome information from the Reye’s Syndrome website at www.ReyesSyndrome.Org/schools.html.

Download some information and take a sample to them to pass on to parents, teachers, and caregivers.  Your actions will save a life!

Other Names for Aspirin:

Acetyl Salicylic Acid
Acetylsalicylic Acid
Aluminum Acetyl Salicylate
Ammonium Salicylate
Amyl Salicylate
Benzyl Salicylate
Butyloctyl Salicylate
Calcium Acetyl Salicylate
Choline Salicylate
Ethyl Salicylate
Lithium Salicylate
Methyl Salicylate
Methylene Disalicylic Acid
Octyl Salicylate
Phenyl Salicylate
Procaine Salicylate
Sal Ethyl Carbonate
Salicylsalicylic Acid
Santalyl Salicylate
Sodium Salicylate
Strontium Salicylate
Sulfosalicylic Acid
Tridecyl Salicylate
Trolamine Salicylate

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December 30, 2012 · 1:15 am