What To Do After Giving Your Child Aspirin

What To Do After Giving a Child Aspirin

3 phone calls within 30 minutes from moms who did not know about the aspirin – Reye’s Syndrome link.  All 3 moms inNo Aspirin Products for Children!  tears.  All 3 moms thinking they have seriously endangered their child’s life.

One mom, of a seven year old, asked her office co-workers if they knew of the danger of Reye’s and aspirin (salicylates). Half! yes, half! of her co-workers were unaware that aspirin products could trigger Reye’s Syndrome.  Half had never heard of Reye’s Syndrome!

This is very scary! The children of the half who were unaware of Reye’s are at terrible risk.

One mom stated that her mother told her “she always use to give her and her siblings aspirin, those little orange chew-ables , and that it never did any harm to any of them.”  They were lucky. Very lucky. Many other families lost children to those little orange chewable “baby” aspirins.

There is no cure for Reye’s. There is no test that can be run to determine if a child is susceptible to Reye’s after ingesting aspirin products.

The only thing a parent can do after giving their child aspirin is watch for Reye’s symptoms.

Symptoms usually show up AFTER the child begins to feel better, goes back to school, and begins to return to a normal everyday routine. They will be their normal selves, and then:

Vomiting is where it begins. The kind that hits hard and fast, without warning.
     This is the first Red Flag.
At the second or third bout of this vomiting, the child should be taken to the emergency room – preferably an emergency room at a children’s hospital.

Then, loss of energy – loss of pep. They will feel lethargic, not interested in playing.
Combine this with the vomiting, and you have a stronger case for Reye’s.

They will want to sleep a lot. They will be difficult to wake up.
They may lose some motor skills; be unsteady on their feet, walk into walls, not recognize where they are, be confused.
At this point, it is -absolutely- critical the child get to an emergency room where a diagnosis of Reye’s can be made.

They may become combative – not want you to touch them, or strike out at anything near them.
At this point, it is imperative the child be admitted to ICU and Reye’s Treatment begun.

Coma is the last phase.

The worst thing about Reye’s is that once Reye’s is triggered, there is little time. The faster the diagnosis of Reye’s can be made, and the treatment for Reye’s begun, the better the child has of surviving.

Most doctors will not think about Reye’s as a first diagnosis. Many of them have not seen a case of Reye’s. They will diagnose the problem as gastroenteritis, or meningitis, and many parents will be asked if the child is on drugs.

You, as a parent, will have to -insist- that your doctor test for, and rule out, Reye’s.

Most doctors think Reye’s has disappeared. We are here to tell you, sadly, it has not, and we receive case reports throughout the year.

If your doctor is unsure, and wants medical support from one of our specialists, all they have to do is call the Foundation at 800.233.7393  and we will put them in touch with one of our knowledgeable doctors.

We tell parents and caregivers; Reye’s is rare;  just watch for symptoms for about 10 days after the child begins to feel better. If symptoms appear, act quickly. We are more than happy to answer any and all questions, too.  Don’t hesitate to call or email us with your concerns. We are here to educate and support you.

Yes, Reye’s is rare, but it has not gone away. If Reye’s was gone, the Foundation’s mission would be accomplished and we would have dissolved.  We are still here because Reye’s is still here, and there are still parents and caregivers who do not know about Reye’s. The only way we can eradicate this horrible child killing disease is through education and awareness.

Save a child’s life, and a family unnecessary trauma and horrific loss, by spreading the word: Kids and Aspirin Products DON’T Mix!

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NRSF and Dick Van Dyke Go To The SAG Awards!

In 1987, Dick Van Dyke lost his granddaughter, Jessica Van Dyke, to Reye’s Syndrome.  Like so many others, Dick’s dickvandyke1relatives and friends had never heard of Reye’s Syndrome prior to Jessica’s death. When Dick found out about the lack of general knowledge on this childhood killer, he pledged his full support in bringing the awareness of Reye’s Syndrome to the public by volunteering to become the Honorary National Chairman for the National Reye’s Syndrome Foundation.

He donated his time and services to create a series of television and radio commercials for the National Reye’s Syndrome Foundation to raise public awareness about Reye’s Syndrome and the danger aspirin posed to children.  That same year, he became the official spokesperson for the National Reye’s Syndrome Foundation.

 Dick Van Dyke Warns about Reye’s Syndrome

  During that time, he also promoted Reye’s Syndrome awareness by appearing on the Phil Donahue Show and Hour Magazine co-hosted by Gary Collins. Dick participated in the Annual Jaime Beth Slavin Celebrity Golf Tournaments in support of NRSF’s Reye’s Syndrome research.

At the age of 86 he shows no signs of slowing down. This year, the Screen Actors Guild will award Dick its highest honor; The Life Achievement Award.

Screen Actors Guild & American Federation of Television and Radio Artists co-president Ken Howard called Van Dyke “an enormously talented performer whose work has crossed nearly every major category of entertainment.”

The 86-year-old entertainer will receive the honor at the annual Screen Actors Guild Awards ceremony in January. His humanitarian work on behalf of the NRSF will be highlighted in a special segment.

Born December 13, 1925, in West Plains, Missouri, to Loren and Hazel Van Dyke, he grew up in Danville, Illinois. He is the father of Barry Van Dyke, and older brother of actor Jerry Van Dyke, who is best known for his role on the TV series Coach. His grandson, Shane Van Dyke, is also an actor and directed Titanic II. Dick’s career spans six decades.

Dick starred in the films Bye Bye Birdie, Mary Poppins and Chitty Chitty Bang Bang and in the TV series The Dick Van Dyke Show and Diagnosis: Murder. He has a star on the Hollywood Walk of Fame on Hollywood Boulevard, and he has already won a Tony, a Grammy and five Emmy awards.

Dick will be presented the performers union’s most prestigious accolade, given annually to an actor who fosters the “finest ideals of the acting profession,” at the 19th Annual Screen Actors Guild Awards®, which premieres live on TNT and TBS on Sunday, Jan. 27, 2013, at 8 p.m. ET, 7 p.m. CT, 6 p.m. MT and 5 p.m. PT.  The work he has done with the NRSF will also be showcased.

Thanks for all you do, Dick! We’ll be cheering with you!  Chim, Chim, Cherri! 

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2012 Gratitude Report

2012 Gratitude Report

EDUCATION:

school nurseEvery year for the past 38 Years the National Reye’s Syndrome Foundation has provided life-saving Reye’s Syndrome information to the families of students in more than 136,000 schools across the United States and its Territories.

School Nurses and Administrators send a Reye’s Syndrome  packet of information home with each student at the beginning of every school year.  This packet includes Reye’s Syndrome Symptoms literature, bookmarks with NRSF contact information, wallet size ‘ingredients to avoid’ cards for Over-The-Counter children’s medications, a Reye’s Syndrome brochure, and a list of medicines that contain aspirin.

We know that this huge, educational initiative saves the lives of children all across the U.S. and we thank all school administrators and nurses for promoting Reye’s Syndrome Awareness!

VOLUNTEERS:

With the guidance of volunteer leaders from across the United States on our Board,  our RS survivors, and our caring community volunteers, the National Reye’s Syndrome Foundation  has stayed on mission for 38 years, educating and promoting awareness and saving lives.

We truly cherish your investment of time and money, and we count on your trust in our mission to eradicate the incidence of Reye’s Syndrome. The work we do at the NRSF is built on a solid foundation of financial accountability, transparency, and ethics.

And there is one more critically important element to our continued success. You. You are here to show us that there is a community of people who keep the mission of the National Reye’s Syndrome Foundation in their hearts each and every day.

bodNRSF’s All Volunteer Board of Directors

ACCOMPLISHMENTS:

A major milestone was achieved this year when talks between the NRSF, the FDA, and Bayer Consumer Health Care resulted in all aspirin manufacturers removing the words “baby aspirin” from all packaging and marketing.  For 37 years we fought for this life saving agreement and it finally came to fruition.  We know that this change will save many lives and we thank the FDA and the aspirin manufacturers for recognizing and acting upon this most serious issue.

This year, we have developed more technology to support our Awareness efforts; Android Apps, and E-books, promoting Reye’s Syndrome Awareness.  Our new apps; Aspirin Sense and Sensitivity, and A Guide to Chickenpox are both available in the google play store.

Our Reye’s Syndrome website is used by more than 150,000 people across the globe each month.  Visits always increase at the beginning of the school year, and during flu season. We are proud, and pleased to provide this quality information.

With the help of Transfer Me To DVD, located at www.TransferMeToDvd.com, all films and videos spanning our 38 year history have now been transferred to DVD for additional preservation.  We Thank them for donating so much of the work and supplies!

WITH YOUR SUPPORT:babyheart_right

  • 6,500 Emails answered this year.
  • 6,200 Phone Calls answered this year.
  • 136,000 Families Educated this year.
  • 1500 Reye’s Syndrome School Projects this year.

Several Major Dreams Came True this year:

  • Bayer removed all ‘baby’ aspirin packaging
  • NRSF goes to the SAG Awards
  • Millions of Young Lives Saved!

We invite you to join us in our work.  We invite you to donate toward our Awareness and Education programs.  We invite you to join the NRSF as a Member.

Thank You!

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Fall 2012

Fall 2012 Message From The NRSF President

johnWe have spent a lot of time this year, as always, on Reye’s Syndrome Awareness projects. We had several Reye’s cases reported, both here in the United States and from other countries. Several cases, are several too many! All we can do is continue to spread awareness and work hard at educating as many people as we can in an effort to save lives.

Spreading awareness and educating new parents, caregivers, and medical professionals not only requires a lot of time, it also requires support.

Issues that are rising include:

  • Parents are not immunizing their children, and this can potentially
    create an epidemic of viral infections like measles, chickenpox,
    and whooping cough returning to plague our youngsters. Viral
    infections that were once almost wiped out are coming back
    around because new parents and caregivers are confused about
    immunizations.
  • H1N1 flu, and new mutating flu strains, are evolving and circling
    the globe. We are not immune, and neither are our children.
    Bird Flu found its way to the North American Continent this
    summer, and Mexico killed millions of chickens and other fowl to
    attempt to contain the virus. The question lingers, did they
    contain the virus?
  • The Internet, with all its wonderful data, also perpetuates a host
    of incorrect information and a lot of it is about Aspirin and
    Aspirin use! There are facial mask recipes made of crushed
    aspirin tablets for teen-agers, and even people who challenge the
    existence of Reye’s Syndrome!
  • Chickenpox Parties! Of all the things to subject a child to, one
    who has no choice in the matter—another child’s germs and
    body fluids! This one should make us all ill just thinking about it!

In all instances, the possibility of Reye’s Syndrome lurks in the background and many parents and caregivers still don’t know about this deadly monster.

So we educate, we provide awareness, and we attempt to reach as many as we possibly can. We hope you are doing the same thing. Our message, your message, can save a little one’s life! Speak Up, and Speak Out—Remind parents about Reye’s Syndrome!

We also congratulate NRSF spokesperson Dick Van Dyke on his Screen Actors Guild selection to receive the coveted dickvandyke1Life Achievement Award. Dick will accept the award January 27 during the SAG Awards. His work with the NRSF and for Reye’s Syndrome will be highlighted during the presentation.

We also thank you, and hope you will continue to support the work that we do. We need your voice, and we need your membership. It all counts, and it all makes a huge difference!

Thank You for Caring.

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Spring 2012

Spring 2012: Message From The NRSF President

johnAlready, this year is shaping up to be a busy year as we extend our Reye’s Syndrome education and awareness outreach.

This year, we are asking families to come together in support of Reye’s Syndrome awareness.  We are asking the older generations to impart their knowledge to the younger generations, and we invite those younger generations to become active in supporting Reye’s Syndrome education and awareness.  Until we find a cure for Reye’s Syndrome, we must continue putting the message out; Kids and aspirin products don’t mix!  We must hand Reye’s Syndrome awareness down from generation to generation until we find a cure!

The uniqueness of the National Reye’s Syndrome Foundation is that all involved  are family.  My wife, Terri, and I have met most of you, and your families, at annual meetings, at hospital bedsides, at chapter gatherings, and at various fund raising events over the years.  The Foundation itself is one big family, with one single goal in mind; the eradication of a monstrous disease!  We don’t have hundreds of thousands of members, or donors.  We know each of you by name, and the name of your loved one attacked by Reye’s Syndrome.  You are not a stranger, you are family.

In today’s electronic world, it is easier than ever to stay in touch, and it is easier than ever to create support for Reye’s Syndrome education and awareness.

How simple it is to ask your boss if every  Friday, or every third Friday of the month be designated a Reye’s Syndrome Awareness Friday, and perhaps a ‘dress down day’, or potluck can be held with proceeds donated to the NRSF in support of educational programs.  Or maybe one sports game at school each year can be dedicated to Reye’s Syndrome Awareness and ticket proceeds  donated to the NRSF for educational programs.  And, for all those who have ‘friends’ on Facebook and other social media sites, creating a Birthday Wish Cause, or Memorial, with the NRSF as recipient of the gift, is a wonderful and so easy way to support Reye’s Syndrome Awareness.  It also helps the NRSF family grow stronger in outreach programs.

We are in this together, you and I.  We are partners in a common cause.   baby1

We are guardians of children past, present and future, and we shall not let them down.

Join the NRSF family in this most important cause.

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Bayer Drops ‘Baby Aspirin’

Bryan, Ohio, July 5, 2011 – by the National Reye’s Syndrome Foundation

Bayer Drops “Baby” Aspirin   coverkids

Today, in a phone call from the FDA, the National Reye’s Syndrome Foundation learned that Bayer Consumer Health Care has agreed to remove the word ‘baby’ from all of its aspirin packaging and marketing materials. The 81mg aspirin product will now be known as Bayer 81mg Low Dose Aspirin.

The National Reye’s Syndrome Foundation (NRSF) had met with the FDA on April 28, 2011 in Silver Springs Maryland, to voice its concerns about consumer misunderstanding of the use of the product, given the front panel stated ‘low dose “baby” aspirin. Although Bayer Consumer Health Care maintains that their use of the word “baby” was meant to describe the product “as a smaller version of their adult 325mg aspirin” product, the National Reye’s Syndrome Foundation found that consumers, especially new parents, were thinking the product was safe for children and infants. “We were receiving calls just about every day from panicked parents who thought they had just killed their child because they had not read the warning label on the back of the package. They only read the front label where it showed the word ‘baby’ and assumed it was safe to give their child”, states Terri Freudenberger, Co-Founder of the Foundation. “We had to do something to clarify the use of this medication to the consumer so we took our concerns to the FDA.”

In 1984 the FDA mandated that all aspirin products display a Reye’s Syndrome Warning label on the back panel of the product after it was discovered by a team of CDC epidemiologists lead by Dr. Karen Starko, that aspirin (salicylate) could trigger Reye’s Syndrome. Dr. Starko participated with the NRSF in the meeting with the FDA in April and had this to say about Bayer’s decision, “This is an important step in aligning marketing and packaging information with proper use. Kudos to the National Reye’s Syndrome Foundation for spearheading the conversation in this issue on behalf of children, and to the FDA for a prompt response.”

Marianne Piemonte, Aspirin Committee Chairperson at the National Reye’s Syndrome Foundation states, “We really have to acknowledge Bayer Consumer Health Care for their commitment to the health and well-being of children, and for their desire to properly educate consumers. The term “baby” aspirin is a misnomer. Forty years after the death of our sweet little girl I can now celebrate her short life, confident that no other parent will ever again innocently give their baby or toddler aspirin believing, erroneously, that it is safe medicine.

Former Maryland Attorney General, Joe Curran, who assisted in setting up the meeting between the NRSF and the FDA stated, “Thanks to Bayer for the agreement to remove “Baby” from bottles and marketing material, and a very special thanks to the leadership of John Freudenberger for the Reye’s Syndrome Foundation programs that have made parents aware of this disease, and of course, a heartfelt thanks to the FDA for listening to our concerns.”

John Freudenberger, President of the National Reye’s Syndrome Foundation, states, “Bayer Consumer Health Care’s decision supports the Foundation’s 37 year mission to eradicate the incidence of Reye’s Syndrome in children, and allows us to get closer to achieving that goal. We thank them for doing the right thing on behalf of children everywhere.”

When Reye’s Syndrome develops, it typically occurs when a person is beginning to recover from a viral illness like flu or chicken pox. It is a disease that affects all organs of the body; most lethally the liver and the brain, and mostly in children. Epidemiological research has shown a connection between Reye’s Syndrome and aspirin (salicylate). More can be learned about Reye’s Syndrome at www.ReyesSyndrome.Org.

For more information about this release, please contact;
National Reye’s Syndrome Foundation
800-233-7393

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eBooks and Apps!

eBooks and Apps

To assist families, caregivers, and medical professionals, the NRSF has created several books and android apps:

  • Aspirin Sense and Sensitivity is an android app found in the google play store.  This app details everything one would want to know about aspirin; what drugs aspirin interferes with, who should and should not take aspirin, lists of products that do and do not contain salicylates (aspirin), and a handy list of ‘other’ ingredient names aspirin is known as.  This is a great app to have on hand when shopping for children’s medications, or for your own needs.
  • A Guide To Chickenpox is an app that assists parents and caregivers in managing children and chickenpox.  This app includes a detailed look at vaccinations, and also provides tools for parents for tracking the needs of their children.
  • Because You Need To Know is an eBook available in all eBook Stores on line, including Apple, Amazon, and Barnes and Nobles that teaches about Reye’s Syndrome.  This ebook can be downloaded in any format from the Smashwords ebook store, to be read on a computer or any ereader device.
  • Coping With Family Stress After Reye’s Syndrome is an eBook available in all eBook Stores on line, including Apple, Amazon, and Barnes and Nobles that helps families touched by the trauma of Reye’s Syndrome.  This ebook can be downloaded in any format from the Smashwords ebook store, to be read on a computer or any ereader device.
  • Coping With Family Stress After Chronic Illness or Death is an eBook available in all eBook Stores on line, including Apple, Amazon, and Barnes and Nobles that assists families through their grief.  This ebook can be downloaded in any format from the Smashwords ebook store, to be read on a computer or any ereader device.

We will keep you updated here as more ebooks and apps become available.

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